• FenderStratocaster@lemmy.world
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    4 days ago

    You missed the mark by a mile on this article.

    Huntington’s disease successfully treated for first time

    Read. That. Again.

    It was a 18 hours of surgery. The advancement is to be celebrated, not whined about because it’s CURRENTLY expensive. People will be saved from decades of agony. You sound like one of those people that claims some secret cabal is hiding the cure for cancer so they can make money.

    • jacksilver@lemmy.world
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      4 days ago

      I appreciate your positivity. This is a huge breakthrough and means that we’ll most likely continue to make this treatment better and more accessible!

      Thats not even mentioning how this treatment may help us figure out how to combat other diseases.

    • SaveTheTuaHawk@lemmy.ca
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      4 days ago

      It will be expensive forever. A similar therapy for SMA children (without surgery) costs US$2.1M. Novartis then gave away doses by lottery. for a few families, they got a dose, for everyone else, their child dies.

      How does Novartis CEO Vasant Narasimhan sleep at night? In a large mansion outside Boston.

      • WolfmanEightySix@piefed.social
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        4 days ago

        Is that the cost, or what people are charged? Like in the USA people are charged an insane figure for insulin, but the product can be made for something like £17.

        • UnderpantsWeevil@lemmy.world
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          4 days ago

          Is that the cost, or what people are charged?

          The latter.

          The therapy isn’t materially cheap, but every point along the line is profiteered on top of the baseline cost.

    • obre@lemmy.world
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      4 days ago

      Actually, you’ve missed the mark. It’s not whining about an advancement, it’s legitimate criticism of the US health industry. He’s just saying what we all know to be true which is that regardless of technological improvements, lifesaving care will continue to be ruinously expensive for those that are able to access it and gatekept from many others.

      If you have a problem with comments like these undermining celebration of scientific progress, then maybe you should think about the structural political issues that lead people to disillusionment and cynicism rather than labeling people as conspiracy theorists.

    • UnderpantsWeevil@lemmy.world
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      4 days ago

      The advancement is to be celebrated, not whined about

      It would be celebrated in a country that wasn’t clawing back access to health care at every turn

      • FenderStratocaster@lemmy.world
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        4 days ago

        I know you are on Lemmy, but not every single comment has to be so dreary and political. Step outside and get some fresh air, brother.

        • ripcord@lemmy.world
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          4 days ago

          This is specifically the sub to escape the dooming. So many people just can’t help themselves.